Urgent help: call 999 if someone's life is at risk, or NHS 111. Sudden new confusion can be delirium, which needs medical help the same day.
Plain-English dementia information for families

Dementia explained

Clear, calm information for people worried about their memory, people living with dementia, and the families and friends who support them.

  • Written for families and carers
  • Based on NHS and NICE guidance
  • UK helplines and support listed

Explore the guides

Dementia affects hundreds of thousands of families across the UK. The NHS says more than 944,000 people in the UK have dementia. Alzheimer’s Society puts the figure at around a million.

If you have just started to worry, or you have had a diagnosis, or you are caring for someone, it can be hard to know where to begin. This website sets out the facts in plain English. It explains what dementia is, how it is diagnosed and treated in the UK, and where to find help.

This is an information website. It does not give medical advice about your own situation. Your GP is the best first contact for any health worry.

Where to start

I am worried about my memory

Forgetting things now and then is common, and it is not always a sign of dementia. But if memory or thinking problems are getting worse, or are affecting daily life, it is worth speaking to a GP.

I have recently been diagnosed

A diagnosis can bring many feelings, from shock to relief. It can also open the door to treatment, support and time to plan.

I am caring for someone

Most people with dementia are supported at home by family and friends. Carers UK estimates there are 5.8 million unpaid carers in the UK, caring for people with all kinds of conditions.

Not a normal part of ageing

Dementia is more common as people get older. But the NHS is clear that it is not a natural part of ageing. It is caused by diseases that damage the brain. That is why it is worth getting symptoms checked rather than putting them down to age.

What this website covers

Each page explains one topic in short sections. Pages list the sources used, such as the NHS, the National Institute for Health and Care Excellence (NICE), Alzheimer’s Society, Dementia UK, Age UK, Carers UK and gov.uk.

The main topics are:

Carers need support too

Caring for someone with dementia can be rewarding. It can also be tiring and lonely. In Carers UK’s State of Caring 2025 survey, 74% of carers said they had felt stressed or anxious, and 40% said they felt depressed.

If you are a carer, your own health matters. You can ask your council for a free carer’s assessment, talk to your GP, or refer yourself to NHS Talking Therapies in England for anxiety or depression.

If you need help now

If someone suddenly becomes confused, call 999 or go to A&E. Sudden confusion can be a sign of a serious illness such as an infection.

If you are struggling and feel unsafe, call 999, contact NHS 111, or call Samaritans free on 116 123 at any time.

Frequently asked questions

Is memory loss always a sign of dementia?

No. Memory can be affected by many things, including stress, low mood, poor sleep, some medicines and vitamin or thyroid problems. A GP can look for these causes. Read more on other causes of memory loss.

Who should I speak to first if I am worried?

Start with your GP. They can check for other causes and, if needed, refer you to an NHS memory assessment service. See getting a diagnosis.

Where can families get support straight away?

Dementia UK’s Admiral Nurse Dementia Helpline (0800 888 6678) and the Alzheimer’s Society Dementia Support Line (0333 150 3456) can both help. See support and helplines for opening hours.

Sources and further reading (5)
  1. NHS: What is dementia?
  2. Alzheimer's Society: Facts for the media
  3. Carers UK: Key facts and figures
  4. NICE guideline NG97: Dementia: assessment, management and support
  5. NHS: Sudden confusion (delirium)
Updated 16 September 20264 min read